Re: Please pray for this little boy! - update on Westin
Westin was discharged 2 days ago! He can also use his right hand and sit propped up by himself!
This was posted yesterday:
Our first full day at home was a good one! Westin remembered all of his toys and enjoyed playing with them over and over. We've already seen more smiles in one day at home than all last week in the hospital. Ha! I will say that we had some fantastic nurses at Riley's that tried their best to make things easy for Westin. But they still had quite a bit of work they had to do with him on a daily basis and this made him very unhappy!
We were hoping to reunite Westin with his baby sister, Becca, but it has to be put on hold for now. Hopefully, next week we'll come together as a family of four if she can kick her cough! We've been anxiously waiting for this for 108 days!
So now that the majority of Westin's medical care is in my hands, I found myself quite overwhelmed tonight at the end of my first full day of handling the responsibility. Westin gets 18 doses of medicine throughout the day, he's on a continuous feeding pump that runs over 18 hours, I have to flush his PIC line daily and try to preserve that IV site to the best of my ability, and then play the roles of PT, OT, Speech and Feeding therapists. Whew! I have a whole new level of respect for all of these professions! When I think of Westin's around-the-clock care and just how much therapy he needs to get back to baseline, my head starts to spin and I find myself feeling very overwhelmed. But before my emotions had a chance to get out of hand this evening, I ran straight to the Word. Tonight the Word was in the form of a devotional book called Heaven Calling. The March 24 devotional was so appropriate for my state of mind that it gave me chills. I love when God speaks directly to us when we earnestly seek His voice.
"...Come to me with your battles and your fears. The size of the problem does not affect my ability to act. With me at your side, you will conquer the problems that once seemed insurmountable. Remember, for me nothing is impossible."
All of you have been truly wonderful with your support and prayers through our entire hospital stay. Thank you! But in my opinion, Westin's journey, or Westin's Walk, is just beginning! He's done with the acute portion of the IVIG treatment and will now concentrate on therapy. We would appreciate your continued prayers and hope that you'll continue to follow his progress as we climb one mountain after another. The Lord has already granted him several miracles and we will never take any of them for granted. We know where Westin was just 6 weeks ago and are truly blessed to be at home! But as Westin starts intense therapy to see how far his body will go, we've kindly asked the Lord to continue to heal him and grant small miracles along the way in hopes that Westin will regain his ability to walk, use his left arm and hand, talk and eat. As I say everyday to those body parts, it's time to "wake up"!